Today held the second Annual Business Meeting for the CFLF Board of directors.  The four-hour meeting held testimony to the tremendously committed team that makes up our Board.  I am very excited to welcome Debra Maloney-Evans and David Theran as our newly appointed Board members.  In reflecting upon the impact CFLF is having on those living with CF, David summed it up very nicely:

“Although the CFLF is a fledgling non-profit, in just a short time the organization has managed to carve out a very unique niche in assisting in the fight against CF.  Through the variety of activity grants that are awarded to its recipients, the CFLF is providing a sense of accomplishment for so many afflicted with the disease through a means that immediately impacts the recipients’ lives.  Science will always be an integral component to defeating the debilitating effects of CF, but for those who ski the slopes for the first time or enjoy the once-unattainable gym membership, the tangibility of the recreation grants provides a new sense of hope and accomplishment.  The promotion of active lifestyles by the CFLF in conjunction with success of research-related CF causes will ultimately lead to longer and stronger lives for those with CF.”

While today’s meeting accomplished a great deal, and covered a lot of ground, it is clear that we have our work cut out for us in bettering the organization in our future growth.  With high hopes of economic up-turn in the coming year, we hope that you are able to support the mission of CFLF to the best of your ability, knowing the direct impact it will have on the lives of those with CF.  Thanks always!

Brian

July 29, 2009 - Thank you to Peter, Cedric, Nathalie, Mark and all the folks at Rapscallion for organizing and sponsoring a wonderful event at the Flatbread Pizza in Bedford, MA.  Rapscallion featured their “Premier” Ale, a deep golden Belgian-inspired ale. The flavor is a mixture of sweetness with some fruity undertones, spiciness, and a light, underlying bitterness.  It was awesome!!  100% of Rapscallion beer sales for the evening was donated, with Flatbread matching up to the first $500. 

All in all, the night was a great success.  The $1000 fundraising goal for CFLF was broken, Flatbread had a much busier evening than usual for a Wednesday night, and Rapscallion was able to introduce there amazing beer to a bunch of new people. 

We look forward to doing future events with Rapscallion throuhout the NorthEast.  Please check them out at www.DrinkRapscallion.com 

Dave Theran, Cedric Daniel, Brian Callanan, Peter DanielLtoR: Nathalie, Peter, Shannon, Brian, Mark, Cedric, Dave

LtoR: Nathalie, Peter, Shannon, Brian, Mark, Cedric, Dave

Wow, I can’t say enough about this new site, except  THANK YOU!!!  to JEG Design and Compass Corp for your support and ongoing innovation of our ‘cyber-office’.  I am still trying to wrap my head and hands around the abilities we have to now stay more in touch with you, our visitors, grant recipients, donors, friends and family of others with CF, and now the international community of CF.  As we all know, the difficulty of establishing a CF community with preventative infectious control measures find even greater importance on having more and more online resources for support and outreach to the broader CF community.  Please check in regularly, and feel free to share your interests and feedback regarding this site, the programs and mission of CFLF, and ways you think we could improve, or that you might be able to help.

Thanks so much for your support, and please also join or CFLF e-news list by clicking on the link at the bottom right of any page within the site.   Be well, stay strong, and live long!

Brian